There have always been disabled people shaping my worldview and understanding, however, I am an expert only about my own disabilities. Disabled storytellers, including Helen Keller, sometimes utilize tactical silence to scream… I value that! However, barriers confronting the disabled require broad and sometimes loud collective action from many people in many communities and not just a marginalized few. Disability activism is a complex, tactical fight over time for self-determination that touches all of us at some point. COVID, world events, and experiencing some barriers disabled and marginalized groups face all the time have compelled me to share a few of my favorite reads related to disability and inclusion.
As a student at San Francisco State University, I took Paul Longmore’s HIST 490 “Disability in America” course and it quite simply changed how I interpret United States history. The autobiographical title essay in Why I Burned My Book presents foundational logic for understanding legal and cultural barriers impacting the disabled, and how capitalism impacts minority groups. Nobody speaks better on disability than the disabled. Longmore creates a model built upon the work of earlier disability scholars-activist in presenting “Catch-22” paradigms in oppressive laws related to race and gender impacting minority groups. When I read Longmore’s ideas, I can again look into his insightful eyes flashing sparks of humor, defiance, anger, and joy. My book about Helen Keller simply would not exist without Longmore’s passionate investment in students.
We do not know the toll that the COVID pandemic will have in the future, we collectively only know the trauma it has wrought. Most of the disabled people I have known, including Paul Longmore, became disabled from poliovirus attacking child populations. Polio was a vector for societal transformation as the disabled constructed new lives abruptly altered by the disease. This book focuses on polio survivors. Wilson surveyed over 150 polio narratives focusing on the Silent Generation and the Baby Boomers (1930-1960) to learn about experiences over lifetimes. While some experienced temporary paralysis, others faced lifetime disability dealing with the disability industry, public relations campaigns, and rehabilitation programs. Survivors fought for accessibility and the ability to work in mainstream occupations. This book offers layered experiences still relevant today.
Polio was the most dreaded disease of twentieth-century America. Whenever and wherever it struck, hospitals filled with victims of the virus. Many experienced only temporary paralysis, but others faced a lifetime of disability. "Living with Polio" is the first book to focus primarily on the personal stories of the men and women who had acute polio and lived with its crippling consequences. Writing from his own experience as a polio survivor, Daniel J. Wilson shapes this impassioned book with the testimonials of numerous polio victims, focusing on the years between 1930 and 1960. He traces entire life experiences of the…
Paul Longmore assignedEveryone Here Spoke Sign Language for the “Disability in America” course I took. As a folklorist this book hooked me. It is totally unique, combining science (genetics), history, maritime culture,and community. It consolidates sign language “oral histories” documenting a Deaf community’s cultural heritage in Martha’s Vineyard passed through generations. Everyone Here Spoke Sign Language offers an essential message from this tight-knit community where deafness was more a trait than a disability. Understanding how Helen Keller had a Deafblind destiny shaped by her times (as earlier were Deafblind woman should be women Julia Brace and Laura Bridgman), I sometimes wonder if Keller would have been less stressed if she had not been pressured by proponents of auralism like Alexander Graham Bell to learn to speak aloud.
From the seventeenth century to the early years of the twentieth, the population of Martha's Vineyard manifested an extremely high rate of profound hereditary deafness. In stark contrast to the experience of most Deaf people in our own society, the Vineyarders who were born Deaf were so thoroughly integrated into the daily life of the community that they were not seen-and did not see themselves-as handicapped or as a group apart. Deaf people were included in all aspects of life, such as town politics, jobs, church affairs, and social life. How was this possible?
My personal creativity is not tidy… I believe nobody creates in a vacuum. The disabled contribute intelligence, perspective, and expression to all modes of creative production. Understanding how to utilize talent from any historically marginalized group means learning how to communicate with folks with diverse abilities and backgrounds. Utilizing respectful language and practices with diverse communities will draw and engage audiences with more vibrant storytelling in today’s world. This practical guide includes case studies designed to guide theater companies to create inclusive productions with the disabled in central and creative roles. Disability andTheatreillustrates how in the theater, where “all the world is a stage”, as in our own lives, creative processes emerge when people with different abilitieswork together… that is just good living.
Disability and Theatre: A Practical Manual for Inclusion in the Arts is a step-by step manual on how to create inclusive theatre, including how and where to find actors, how to publicize productions, run rehearsals, act intricate scenes like fights and battles, work with unions, contracts, and agents, and deal with technical issues. This practical information was born from the author's 16 years of running the first inclusive theatre company in New York City, and is applicable to any performance level: children's theatre, community theatre, regional theatre, touring companies, Broadway, and academic theatre. This book features anecdotal case studies that…
I believe a society’s resilience does not happen by coddling, oppressing, or marginalizing the disabled (or any minority group), but by fostering holistic, inclusive communities that move in cinque. We Move Together is a picture book about disability justice designed for intergenerational sharing. It is appropriate for all ages as it simply states we as a society move best together no matter of disability, race, gender, or age. The brilliance of this straightforward assertion is its universal intersectionality. The book contains helpful explanations of statements in the verses along with resources for learning more in the back. I love this message! Removing barriers to access, communication, work, relationships, and living independent and self-determined lives helps everyone and fosters healthy democracy.
A bold and colorful exploration of all the ways that people navigate through the spaces around them and a celebration of the relationships we build along the way. We Move Together follows a mixed-ability group of kids as they creatively negotiate everyday barriers and find joy and connection in disability culture and community. A perfect tool for families, schools, and libraries to facilitate conversations about disability, accessibility, social justice and community building. Includes a kid-friendly glossary (for ages 3–10). This fully accessible ebook includes alt-text for image descriptions, a read aloud function, and a zoom-in function that allows readers to…
As a special collections librarian at San Francisco State University, I wrote this book as a library reference source for ABC-CLIO’s “Women Making History” series. Helen Keller never viewed herself as a “SuperCrip,” but she allowed herself to cast her as one who overcame obstacles to lobby for governmental disability support. This disability history chronicles Keller and other Deafblind people through tremendous change. I use this book to do reference,but I read it for the dramatic story arcs of Keller’s life moving through the world of ideas. Those closest to her were caught in the web of her struggles to be an independent and engaged citizen. The power dynamics of the Helen Keller-Anne Sullivan Macy relationship can be understood within emerging social reform movements.
After Dr. Shawn Jennings, a busy family physician, suffered a brainstem stroke on May 13, 1999, he woke from a coma locked inside his body, aware and alert but unable to communicate or move. Once he regained limited movement in his left arm, he began typing his story, using one hand and a lot of patience.
With unexpected humour and tender honesty, Shawn shares his experiences in his struggle for recovery and acceptance of his life after the stroke. He affirms that even without achieving a full recovery life is still worth…
Locked In Locked Out: Surviving a Brainstem Stroke
After Dr. Shawn Jennings, a busy family physician, suffered a brainstem stroke on May 13, 1999, he woke from a coma locked inside his body, aware and alert but unable to communicate or move. Once he regained limited movement in his left arm, he began typing his story, using one hand and a lot of patience.
With unexpected humour and tender honesty, Shawn shares his experiences in his struggle for recovery and acceptance of his life after the stroke. He affirms that even without achieving a full recovery life is still worth…
